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AAV of the Parent Survey Information Presentation

Accessible Alternate Version of the Parent Survey Information Presentation.

This page is the Accessible Alternative Version (AAV) of the Parent Survey Information Presentation (Posted 07-May-2012; PDF) posted at the AB 114 Special Education Transition page. The PDF version is considered to be the official version of the document.


Slide 1

AB 114 Transition Workgroup
Survey Results
February 16, 2012

Workgroup Participants:

National Alliance on Mental Illness (NAMI) California

Disability Rights Education&Defense Fund (DREDF)

Family SOUP

Team of Advocates for Special Kids (T.A.S.K.)

Slide 2

AB 114 Transition Workgroup
Invitation to Obtain Parent Viewpoints

Slide 3

AB 114 Transition
Survey Process

Slide 4

AB 114 Transition
Survey Goals

Slide 5

AB 114 Transition
Presentation Intent

Our presentation today will:

  1. Report quantitative results of survey and synthesize some of the quantitative data
  2. Invite your initial impressions, questions, feedback regarding data
  3. State major themes of parents/caregiver responses
  4. Invitation to discuss how to work together more effectively for the benefit of our children within the limitations of the current AB 114 transition and IDEA

Slide 6

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 1:

During the 2010/11 school year did your child receive any mental health supports or services authorized or documented in a written IEP team agreement?

Slide 7

Question # 1 results:

59.9% of applicable respondents (284/474) had a child receiving mental health supports/services through an IEP in 2010-2011.
[54.1% of all respondents (284/525) answered “yes”]

An image of a bar graph depicts this information

Slide 8

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 2:

During the 2010/11 school year, did your child’s IEP provide for the services of a psychiatrist to evaluate the need for or prescribe medication, or to monitor your child’s psychiatric medication?

Slide 9

Question # 2 results:

23.9% of applicable respondents (112/469) reported their child’s IEP provided services of a psychiatrist to evaluate the need for, to prescribe, or to monitor medication.
[20.2% of all respondents (112/555) answered “yes”]

An image of a bar graph depicts this information

Slide 10

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 3:

If your child had an IEP during the 2010/11 school year, have you been told that any of the mental health supports or services described in that IEP will not be provided to your child this year (in 2011/12) because a provider or funding for a specific type of service is no longer available for your child?

Slide 11

Question # 3 results:

30.8% of applicable respondents (124/402) reported they were told that prior year IEP mental health supports or services would not be provided in 2011-12 because a provider or funding for that service was no longer available.
[23.7% of all respondents (124/523) answered “yes”]

An image of a bar graph depicts this information

Slide 12

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 4:

Have school authorities told you of changes in CA laws or state budget as a reason for specific changes this year to mental health supports or services described in your child’s IEP?

Slide 13

Question # 4 results:

25.2% of applicable respondents (109/432) reported school authorities told them that changes in California laws or state budget were the reason for changes to mental health supports or services in their child’s IEP.
[20.9% of all respondents (109/521) answered “yes”]

An image of a bar graph depicts this information

Slide 14

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 5:

Has your child’s school personnel advised or suggested to you that schools can no longer provide the support of a psychiatrist to prescribe, monitor, or adjust medication in connection with your child’s school program?

Slide 15

Question # 5 results:

18.5% of applicable respondents (71/383) reported school personnel advised them the school could no longer support a psychiatrist to prescribe, monitor, or adjust medication in connection with their child’s IEP.
[13.8% of all respondents (71/513) answered “yes”]

An image of a bar graph depicts this information

Slide 16

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 6:

Has your child’s IEP team addressed, to your satisfaction, concerns you have had about changes occurring this year in regards to your child’s mental health support services?

Slide 17

Question # 6 results (continued):

64% of applicable respondents (237/370) reported their child’s IEP team HAD NOT addressed changes occurring in their child’s mental health support services to their satisfaction.
[46% (237/515) of all respondents answered “no”]

An image of a bar graph depicts this information

Slide 18

Question # 6 results:

25.1% of applicable respondents (93/370) reported their child’s IEP team HAD addressed changes occurring in mental health support services to their satisfaction.
[18.1% of all respondents (93/515) answered “yes”]

An image of a bar graph depicts this information

Slide 19

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 7:

In regard to the 2010/11 school year, please rate on a scale of 1 (lowest) to 5 (highest), how satisfied you are with the effectiveness of school-related mental health supports/services your child received.

Slide 20

Question # 7 results:

In rating the effectiveness of 2010-11 school-related mental health services for their children:

51.7% were NOT SATISFIED to VERY UNSATISFIED
26.9% were SATISFIED to VERY SATISFIED;
21.4% were NOT SURE

An image of a bar graph depicts this information

Slide 21

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 8:

In regard to the 2011-12 school year, please rate on a scale of 1 (lowest) to 5 (highest), how satisfied you are with the effectiveness of school-related mental health supports/services your child has been receiving this year.

Slide 22

Question # 8 results:

In rating the effectiveness of 2011-12 school-related mental health services for their children:

46.3% were NOT SATISFIED to VERY UNSATISFIED;
28.9% were SATISFIED to VERY SATISFIED;
24.8% were NOT SURE

An image of a bar graph depicts this information

Slide 23

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 9:

Have you or your child encountered barriers to communication with school authorities or others involved in IEPs and related mental health supports/service planning? If yes, please briefly describe.

Slide 24

Question # 9 results:

47.7% ofapplicable respondents (207/434) reported they HAD encountered barriers to communication.
[41.2% of all respondents (207/503) answered “yes”]

An image of a bar graph depicts this information

Slide 25

Question # 9 results (continued):

42.6% of applicable respondents (185/434) reported they HAD NOT encountered barriers to communication.
[36.8% of all respondents (185/503) answered “no”]

An image of a bar graph depicts this information

Slide 26

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 10:

If your child is not receiving mental health supports or services through the IEP process, do you believe those services may be necessary for your child to learn and process?

Slide 27

Question # 10 results:

Of those whose children are not receiving mental health supports/services through the IEP process:

75% of applicable respondents (239/317) believe these supports may be necessary for their children to learn and progress.
[47.9% of all respondents (239/503) answered “yes”]

An image of a bar graph depicts this information

Slide 28

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 11:

What kind of health care insurance, if any, does your child have?

Slide 29

Question # 11 results:

29.1% Medi-Cal
5.1% Healthy Families program
62.6% Private health insurance
3.2% No health insurance

An image of a bar graph depicts this information

Slide 30

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 12:

Have you been told that some mental health services can be provided to your child, but only if you allow the school district to bill Medi-Cal or other insurance?

Slide 31

Question # 12 results:

20.7% of applicable respondents (86/415) reported they were told that mental health services could be providedonlyif they allowed the school district to bill Medi-Cal or other insurance.
[18% of all respondents (86/477) answered “yes”]

An image of a bar graph depicts this information

Slide 32

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 13:

Has your child been denied any mental health support service such as day treatment or family counseling, due to his or her current lack of Medi-Cal coverage?

Slide 33

Question # 13 results:

18.4% of applicable respondents (65/354) reported their children had been denied mental health services (such as day treatment or family counseling) because they lacked Medi-Cal coverage.
[13.7% of all respondents (65/475) answered “yes”]

An image of a bar graph depicts this information

Slide 34

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 14:

Have you been asked to provide consent for the school district to bill Medi-Cal or other insurance for mental health supports or services that are included on an IEP?

Slide 35

Question # 14 results:

24.4% of applicable respondents (94/386) reported they were asked to provide consent for the school district to bill Medi-Cal or other insurance for services included in their child’s IEP.
[20% of all respondents (94/470) answered “yes”]

An image of a bar graph depicts this information

Slide 36

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 15:

If you answered “Yes” to Question #14, did the consent form advise you that billing Medi-Cal or other insurance for IEP services could affect “caps” (maximum amounts allowed) for health care services or costs for private insurance?

Slide 37

Question # 15 results:

Of the 94 persons answering “yes” to Question #14:
9.6% (9/94) reported being informed that consent to bill Medi-Cal or other insurance could affect “caps” for services or costs,
OR
6.2% (9/145) of those who treated this question as applicable.
[2.4% of all respondents (9/373) answered “yes”]

An image of a bar graph depicts this information

Slide 38

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 16:

Does your child receive mental health services that require residential (out-of-home) placement through his or her IEP?

Slide 39

Question # 16 results:

16.8% of applicable respondents (66/393) reported they have a child who receives residential services through his or her IEP.
[14% of all respondents (66/470) answered “yes”]

An image of a bar graph depicts this information

Slide 40

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 17:

Have you been told that your child could no longer have residential services due to a change in the law?

Slide 41

Question # 17 results:

Of 66 answering Q16 that their child received residential services:
27.3% (18/66) report they were told their child could no longer receive residential services due to a change in the law,
OR
7.7% (18/235) of those who treated this question as applicable.
[3.9% of all respondents (18/463) answered “yes”]

An image of a bar graph depicts this information

Slide 42

AB 114 Transition

Basic Quantitative Data
(19 Survey Questions)

Question # 18:

If you answered “yes” to Question #17: Did you receive written notice (“Prior Written Notice”) from school or CMH with reasons why a change to your child’s residential placement is needed?

Slide 43

Question # 18 results:

22% (4/18) who reported in Q#17 that their child lost residential placement, said they received Prior Written Notice,
OR
7% (4/54) of those who treated this question as applicable.
[1.1% (4/354) of all respondents answered “yes”]

An image of a bar graph depicts this information

Slide 44

AB 114 Transition
Basic Quantitative Data
(19 Survey Questions)

Question # 19:

If on Question #7 or #8, you rated you satisfaction as “1” (very unsatisfied), “2” (not satisfied), or “3” (not sure or neutral), briefly comment on the reasons for dissatisfaction or misgivings about ERMH services or supports your child has received.

NOTE: A space to type in brief comments was provided in the answer portion of every survey question. We will give examples from the major themes reflected in the numerous comments received.

Slide 45

Question #19 Results:

Initial Thoughts, Questions, Impressions…
What are your initial impressions, questions, and feedback on this data?

Comments Sent In By Parents: Major Themes
Themes from the comments parents and caregivers typed in as part of the survey.

Slide 46

AB 114 Transition Survey

Overview of Themes from Parent Comments

  1. Gratitude (when MH services help the child)
  2. Not receiving adequate amount of accurate information on ERMHS
  3. Lack of understanding of IDEA
  4. Pain, anguish, frustration, anger
  5. Insufficient supervisory attention to whether teacher or ERMHS provider is up to the responsibility

Slide 47

AB 114 Transition Survey

Discussion, Questions, Answers, & Feedback

Slide 48

AB 114 Transition Survey

Wrapping Up: Slide 1 of 8

Whether or not a district or a Special Education Local Plan Area (SELPA) is directing information to families about AB 114 transitions, families by and large do not feel well informed.

Slide 49

AB 114 Transition Survey

Wrapping Up: Slide 2 of 8

Families report throughout the survey that they have been receiving verbal and written communication about mental health services for their children in connection with the AB 114 transition at a very low rate.

Slide 50

AB 114 Transition Survey

Wrapping Up: Slide 3 of 8

Families are anxious about what is to come.

Slide 51

AB 114 Transition Survey

Wrapping Up: Slide 4 of 8

We know that many families view getting their children’s special education needs met by the school systems, as needlessly adversarial experiences.

That is not news, but it is borne out by the survey responses.

Slide 52

AB 114 Transition Survey

Wrapping Up: Slide 5 of 8

Our survey suggests a comparatively low proportion of students currently receiving special education services are receiving Medi-Cal benefits.

If this is correct, families will need linkage to other resources that can replace some of the former AB 3632 services.

Slide 53

AB 114 Transition Survey

Wrapping Up: Slide 6 of 8

While these Workgroup partners conducted a quick survey administeredby non-research analysts, conclusions point to the need for further studies to be conducted by professional researchers.

Slide 54

AB 114 Transition Survey

Wrapping Up: Slide 7 of 8

The changing of the guard from County Mental Health Departments to Local Education Agencies (LEAs, also known as school districts), as well as possibly to alternate service providers, may provide opportunities for improving the culture of special education services, and school systems’ partnerships with families.

Slide 55

AB 114 Transition Survey

Wrapping Up: Slide 8 of 8

The survey presenters and their sponsoring associations thank the CDE for including us in the planning process and for allowing us to present our survey results.

We would also like to thank the other organizations which volunteered to distribute the survey: California Alliance of Child and Family Services; California Council of Community Mental Health Agencies; Family Resource Networks of California; Family & Youth Roundtable; and CA Parent Training & Information (PTI) Centers. Special thanks also to the California Academy on Child & Adolescent Psychiatry, whose president and president-elect gave us valued input in the course of review of the data received in the survey.

Slide 56

AB 114 Transition Workgroup
Survey Results

Thank you for your interest in our survey.

Team of Advocates for Special Kids (T.A.S.K.)

Questions:   Policy & Program Services | AB114TWG@cde.ca.gov |916-323-2409
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